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- The latest MPN Video Library courtesy of Patient Power.
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- MPN Resources
Jun 25, 19:13
This is encouraging, but no trials in MPNs yet - https://www.mdanderson.org/publications/cancer-frontline/2017/06/utilizing-the-bodys-natural-born-killers.html
Jun 23, 06:01
European Hematology Association publishes new OPEN ACCESS journal (HemaSphere) with Wolters Kluwer, dedicated to support hematology patient care research and education worldwide - http://www.pvreporter.com/hemasphere-open-access-journal-dedicated-support-hematology-patient-care-research-education-worldwide/
Jun 17, 18:47
PharmaEssentia Corporation, a fully integrated biopharmaceutical company publicly traded and based in Taiwan, is providing this site to help keep healthcare practitioners and affected patients informed of ongoing developments around ropeginterferon alfa-2b (PEG-IFN α-2b).
Jun 16, 17:12
Our friends at Patient Power Myeloproliferative Neoplasms - MPN are holding a free town meeting on June 24th at Lurie Cancer Center of Northwestern in Chicago. It will feature Lurie's Dr. Brady Stein and MD Anderson's Dr. Naveen Pemmaraju. Check out the link for more details - https://patientpower.info/event/mpn-chicago-2017
Jun 12, 19:15
New Cancer Drug Is So Effective Against Tumors, the FDA Approved It Immediately - https://yhoo.it/2rjK8da
May 27, 00:43
Happy Memorial Day weekend to everyone! This was my first article ever, but the message still rings true today. Medical marijuana is a choice / freedom that should be available to Every MPN patient who wants to try natural treatment for pain, anxiety, sleeping issues, etc. - http://www.pvreporter.com/the-marijuana-papers-author-revealed/
May 23, 21:17
The latest information on the IncyteCARES program can be found below. They provide financial assistance for eligible patients taking Jakafi, education & support, and connection to additional support services.
May 10, 11:45
Hopefully coming to MPN treatment in the near future... Always optimistic! http://onlinelibrary.wiley.com/doi/10.1111/ejh.12893/full
May 04, 00:26
May 01, 03:04
A pet is like medication without side effects that has so many benefits. My own dog, Bailey, an Aussiedoodle, has made a world of difference in my life in numerous ways over the last 2 years. Resulting in improved mood, more physical activity (dang she does have to be walked) and lower stress levels (usually:) and SO much more. I am doing an article on "Your Dog as therapy for your MPN." I'm looking for 10-12 patients to give me a short paragraph, telling us how your DOG has helped you with your MPN. Sorry bird, snake and cat lovers the story is focused only on wo/man's best friend. Please include a picture of your dog or you and your dog. Let me know if I should use your first name or full name. Email to email@example.com - once I get enough replies, I will post back to update the group. The article will appear on an upcoming post on PV Reporter - As always, thanks for your help!
Apr 25, 21:39
Incyte is holding multiple patient education events around the country. During the session, you will be able to connect with an MPN specialist, meet other MPN patients, learn ways to take an active approach in managing your condition and more. Take a look here for a list of upcoming events - https://www.mpnpatientevent.com/
Apr 24, 01:01
The Health Benefits of Therapeutic Oncology Massage for MPN Cancer patients. First in a Series - "Natural Healing Ideas for MPN patients." I will be looking for some patient input for my next article, stay tuned! http://www.pvreporter.com/health-benefits-therapeutic-oncology-massage-mpn-cancer-patients/
Apr 11, 02:07
My First TV appearance for MPN-PV patient advocacy. Worth a watch for all you newbies.....remember, you will be your own best advocate! PV Reporter aka David Wallace. Big time thank you to all the contributors and partners over the last 3 1/2 years....together, we make a great team! http://www.thedoctorstv.com/videos/rare-blood-cancers-what-you-need-to-know
Apr 04, 15:17
North Carolina - Senate Bill 579, The Catherine A. Zanga Medical Marijuana Bill allowing the use of Medical Marijuana for alleviating cancer pains (and other conditions). This is the 2nd Medical Marijuana bill introduced in NC this year....between the 2 bills, I think the bible belt state (that I live in) has the chance to loosen up and offer a natural treatment for pain, anxiety, sleep and other issues caused by cancer that is approved in over 1/2 the U.S. Let's get her done in 2017!! - http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=s579
Apr 01, 02:20
Mar 28, 01:28
Mar 25, 00:13
Mar 24, 04:32
Shared stories and "words of wisdom" from patient advocates around the country. Be Your Own Advocate is of the utmost importance! Produced by our friends at Patient Empowerment Network. . The panel of patient advocates includes David Denny a Myelofibrosis (MF) patient, Andi Malitz an Essential Thrombocythemia (ET) patient, and Alisa Rouse a Polycythemia Vera (PV) patient. The panel shares their inspiring stories, how MPN has effected their life, and what they do to live well with t...
Mar 12, 21:53
**The PV Reporter Resources Page - has been updated to include All of the Highly Informative presentations from the 2017 Joyce Niblack MPN Patient Conference**, scroll down to the middle of the page - http://www.pvreporter.com/resources/
Mar 10, 23:30
An interesting commentary, Incyte has been speculated as an acquisition candidate for the last year or so- https://www.streetinsider.com/dr/news.php?id=12656726&gfv=1