PV Reporter

PV Reporter provides “easy access” to pertinent information on Myeloproliferative Neoplasms (MPNs) for patients, caregivers, researchers and physicians.
Features include:
  • MPN Search is a “custom search engine” that indexes research data, reports, stories, and news items from top reference sources in the MPN World.
  • The latest MPN Video Library courtesy of Patient Power.
  • Automated News Feed with up to date articles from MPNforum, Patient Power, MPN Research Foundation and more.
  • MPN Resources

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@PVReporter Dec 08, 00:13

Ropeginterferon as Effective but Safer Than Hydroxyurea in Polycythemia Vera https://t.co/imHPCeMyDp #ASH16 #mpnsm

@PVReporter Dec 06, 19:00

https://t.co/nawFZtGAo9 PERSIST-2 Phase 3 Study Of Pacritinib vs BAT Shows encrgng Clinical Activity In High-Risk Patients w Adv MF #ASH16

@PVReporter Dec 03, 21:48

CURE® Magazine Hosts 4th Annual Gala Honoring MPN Heroes® https://t.co/DqfYWg8LF8 via @PRWeb #mpnsm #mpnheroes16

@PVReporter Dec 03, 21:45

Feeling honored for this award...All MPN patients are heroes fighting the battle! #mpnheroes16 #mpnsm #ASH16 https://t.co/TIjJq7AHP4

@PVReporter Nov 26, 20:13

Thank you @MPNAdvocate! Most of my "live reports" will be on #Facebook PV Reporter page. With more formal interviews posted upon return.

@PVReporter Nov 21, 23:03

I'm excited and looking forward to reporting from #ASH16! I have several areas of interest I will be studying & le… https://t.co/cf4SnGEmqJ

@PVReporter Nov 15, 20:37

@andrewschorr Appreciate that! Met #PatientAdvocate s fr around the world who are very engaged in supporting patients in their country.

@jjkiladjian Oct 25, 04:20

Exciting meeting in Vienna about the ropeginterferon studies. Results expected to be presented @ASH_hematology meet… https://t.co/2sIw1RfX33

@power4patients Oct 22, 22:35

Through his own research David Wallace found the right treatment for the control he wanted with his disease… https://t.co/JM3wJjhqBB

@JustinArnallUNC Oct 22, 22:34

Some MPN pts advocate & connect to help others, we have the founder of PV Reporter with us today!!! https://t.co/9hDNwx2H3O #MPNLCI16

@PVReporter Oct 18, 18:07

Is a cure for #bloodcancer around the corner? https://t.co/izvudT7csO #clinical trial #mpnsm, #cytarabine

@cure_magazine Oct 18, 03:02

The use of medical marijuana is surrounded by stigma, questions and misconceptions. https://t.co/rIs8xE7RHJ

@PVReporter Oct 07, 18:46

"Well you don't look sick." A phrase commonly heard by #MPN patients. #mpnsm #BloodCancer https://t.co/SK0BK83nQ9

@PVReporter Oct 04, 18:37

Repurposing Old #Drugs for New Indications https://t.co/YXYA5BQEAs via @rareDR, #raredisease

@PatientPower Sep 27, 23:18

Are you or a loved one struggling with #MPN diagnosis? Patient-run @PVReporter has tools to help you #MPNSM

@PVReporter Sep 22, 18:42

Charlotte, NC MPN Town Meeting for Patients, Care Partners and Families, October 22. Looking forward to an informat… https://t.co/YJ0g9W1nF1

@PVReporter Sep 19, 21:40

Looking forward to my first town hall, finally in my hometown! Always enjoy meeting patients in person. https://t.co/65zyHKRCNR

@PVReporter Sep 16, 15:23

Join us in the fight against #bloodcancer! September is our #BloodCancerAwareness month. #BCAM #leukemia https://t.co/OlN1tqaQzG

@PVReporter Sep 16, 01:36

@andrewschorr @MPN_RF @MDAndersonNews @power4patients - First class experience, enjoyed working with everyone!

@PatientPower Sep 16, 01:32

Learn symptoms and complications of #MPNs through this infographic #MPNSM @power4patients @MPN_RF @PVReporter https://t.co/CQu9rYxiqs

@power4patients Sep 08, 00:03

Are you or a loved one struggling with #MPN diagnosis? Patient-run @PVreporter has tools to help you https://t.co/o2sgcgz45V

@PVReporter Sep 03, 14:43

Live your life to the fullest! #BloodCancerAwarenessMonth #bcam #mpnsm https://t.co/rXLiJi7UYv

@PVReporter Sep 02, 17:31

Join us in the fight against #bloodcancer! September is our #BloodCancerAwareness month. #BCAM #mpnsm https://t.co/SrCePY1vDx

@PVReporter Sep 01, 20:51

Today is the first day of #BloodCancerAwareness month! Join us in the fight against #bloodcancer and #MPN #BCAM https://t.co/hdqNNkCVTn

@power4patients Sep 01, 20:37

Sept is #BloodCancer Awareness Month & we’re highlighting 1 type: myeloproliferative neoplasms#MPN #MPNSM @PatientPower @PVReporter @MPN_RF

@PVReporter Aug 30, 15:06

Understanding the #JAK2 Mutation - https://t.co/d4sBgw8wws #blood cancer #mpnsm #gene

@PVReporter Aug 26, 13:31

@StraightANurse Thank you so much!...I try hard to help patients as much as I can.

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