- MPN Search is a “custom search engine” that indexes research data, reports, stories, and news items from top reference sources in the MPN World.
- The latest MPN Video Library courtesy of Patient Power.
- Automated News Feed with up to date articles from MPNforum, Patient Power, MPN Research Foundation and more.
- MPN Resources
May 23, 21:17
The latest information on the IncyteCARES program can be found below. They provide financial assistance for eligible patients taking Jakafi, education & support, and connection to additional support services.
May 10, 11:45
Hopefully coming to MPN treatment in the near future... Always optimistic! http://onlinelibrary.wiley.com/doi/10.1111/ejh.12893/full
May 04, 00:26
May 01, 03:04
A pet is like medication without side effects that has so many benefits. My own dog, Bailey, an Aussiedoodle, has made a world of difference in my life in numerous ways over the last 2 years. Resulting in improved mood, more physical activity (dang she does have to be walked) and lower stress levels (usually:) and SO much more. I am doing an article on "Your Dog as therapy for your MPN." I'm looking for 10-12 patients to give me a short paragraph, telling us how your DOG has helped you with your MPN. Sorry bird, snake and cat lovers the story is focused only on wo/man's best friend. Please include a picture of your dog or you and your dog. Let me know if I should use your first name or full name. Email to email@example.com - once I get enough replies, I will post back to update the group. The article will appear on an upcoming post on PV Reporter - As always, thanks for your help!
Apr 25, 21:39
Incyte is holding multiple patient education events around the country. During the session, you will be able to connect with an MPN specialist, meet other MPN patients, learn ways to take an active approach in managing your condition and more. Take a look here for a list of upcoming events - https://www.mpnpatientevent.com/
Apr 24, 01:01
The Health Benefits of Therapeutic Oncology Massage for MPN Cancer patients. First in a Series - "Natural Healing Ideas for MPN patients." I will be looking for some patient input for my next article, stay tuned! http://www.pvreporter.com/health-benefits-therapeutic-oncology-massage-mpn-cancer-patients/
Apr 11, 02:07
My First TV appearance for MPN-PV patient advocacy. Worth a watch for all you newbies.....remember, you will be your own best advocate! PV Reporter aka David Wallace. Big time thank you to all the contributors and partners over the last 3 1/2 years....together, we make a great team! http://www.thedoctorstv.com/videos/rare-blood-cancers-what-you-need-to-know
Apr 04, 15:17
North Carolina - Senate Bill 579, The Catherine A. Zanga Medical Marijuana Bill allowing the use of Medical Marijuana for alleviating cancer pains (and other conditions). This is the 2nd Medical Marijuana bill introduced in NC this year....between the 2 bills, I think the bible belt state (that I live in) has the chance to loosen up and offer a natural treatment for pain, anxiety, sleep and other issues caused by cancer that is approved in over 1/2 the U.S. Let's get her done in 2017!! - http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=s579
Apr 01, 02:20
Mar 28, 01:28
Mar 25, 00:13
Mar 24, 04:32
Shared stories and "words of wisdom" from patient advocates around the country. Be Your Own Advocate is of the utmost importance! Produced by our friends at Patient Empowerment Network. . The panel of patient advocates includes David Denny a Myelofibrosis (MF) patient, Andi Malitz an Essential Thrombocythemia (ET) patient, and Alisa Rouse a Polycythemia Vera (PV) patient. The panel shares their inspiring stories, how MPN has effected their life, and what they do to live well with t...
Mar 12, 21:53
**The PV Reporter Resources Page - has been updated to include All of the Highly Informative presentations from the 2017 Joyce Niblack MPN Patient Conference**, scroll down to the middle of the page - http://www.pvreporter.com/resources/
Mar 10, 23:30
An interesting commentary, Incyte has been speculated as an acquisition candidate for the last year or so- https://www.streetinsider.com/dr/news.php?id=12656726&gfv=1
Feb 17, 03:01
We Are MPN: Education Symposium for Patients (Irvine, CA). This is at Dr Angela Fleischman's UC Irvine campus, April 22, more details forthcoming - http://www.wearempn.org/we-are-mpn-patient-education-program
Feb 13, 23:02
Many researchers have expressed an interest in exploring P1101’s potential as an alternative interferon that can cause less severe side effects compared with other medications, such as Roche Holding AG’s peginterferon alfa-2a (Pegasys), the company said. PharmaEssentia backs new study on PV drug - PharmaEssentia Corp yesterday announced that it is backing a physician-led clinical study in Europe testing its drug to treat polycythemia vera (PV) as a preventative measure for a wider age range of patients. - http://www.taipeitimes.com/News/biz/archives/2017/02/14/2003664919
Feb 11, 17:53
Anxiety, Distress Common Among Patients With BCR-ABL-negative MPNs (this is not surprising) - http://www.oncologynurseadvisor.com/myeloproliferative-neoplasms/psychological-symptom-burden-for-patients-with-myeloproliferative-neoplasms-examined/article/636872/
Feb 04, 23:49
by Alisa Rouse - With sadness I'm sorry to share with you that the MPN community has lost one of the pioneers. Robert Tollen passed away in his sleep on February first. He was one of the first to bring awareness to the diseases with an email list and advocated in the early days of the internet. He was one of the first to advocate the use of interferon in MPNs and has continued to advocate through social media and Facebook. I'm sure most of us have had a conversation with him at some point. If you have, you know that he could be a little abrasive at times or possibly extremely abrasive at others, but in the end he was intelligent and educated on our diseases. Love him or hate him he meant well and really did make a difference. So with that in mind, please no negative comments and let's please keep his family and our community in our prayers during this time of loss. http://www.legacy.com/obituaries/herald/obituary.aspx?n=robert-richard-tollen&pid=183928845
Jan 29, 22:26
A Gaping Hole in U.S. Research on MPN Combo Therapies (RUXOPeg) - See more at: https://mpncancerconnection.org/2017/01/dr-mesa-and-dr-mikhael-discuss-latest-mpn-research-2017/#sthash.rG7GXvTd.dpuf
Jan 20, 21:01
The latest on long-acting Interferons - http://www.oncologytube.com/video/update-on-long-acting-interferons-for-mpn/1038272