PV Reporter

PV Reporter provides “easy access” to pertinent information on Myeloproliferative Neoplasms (MPNs) for patients, caregivers, researchers and physicians.
Features include:
  • MPN Search is a “custom search engine” that indexes research data, reports, stories, and news items from top reference sources in the MPN World.
  • The latest MPN Video Library courtesy of Patient Power.
  • Automated News Feed with up to date articles from MPNforum, Patient Power, MPN Research Foundation and more.
  • MPN Resources

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@power4patients Oct 22, 22:35

Through his own research David Wallace found the right treatment for the control he wanted with his disease… https://t.co/JM3wJjhqBB

@JustinArnallUNC Oct 22, 22:34

Some MPN pts advocate & connect to help others, we have the founder of PV Reporter with us today!!! https://t.co/9hDNwx2H3O #MPNLCI16

@PVReporter Oct 18, 18:07

Is a cure for #bloodcancer around the corner? https://t.co/izvudT7csO #clinical trial #mpnsm, #cytarabine

@cure_magazine Oct 18, 03:02

The use of medical marijuana is surrounded by stigma, questions and misconceptions. https://t.co/rIs8xE7RHJ

@PVReporter Oct 07, 18:46

"Well you don't look sick." A phrase commonly heard by #MPN patients. #mpnsm #BloodCancer https://t.co/SK0BK83nQ9

@PVReporter Oct 04, 18:37

Repurposing Old #Drugs for New Indications https://t.co/YXYA5BQEAs via @rareDR, #raredisease

@PatientPower Sep 27, 23:18

Are you or a loved one struggling with #MPN diagnosis? Patient-run @PVReporter has tools to help you #MPNSM

@PVReporter Sep 22, 18:42

Charlotte, NC MPN Town Meeting for Patients, Care Partners and Families, October 22. Looking forward to an informat… https://t.co/YJ0g9W1nF1

@PVReporter Sep 19, 21:40

Looking forward to my first town hall, finally in my hometown! Always enjoy meeting patients in person. https://t.co/65zyHKRCNR

@PVReporter Sep 16, 15:23

Join us in the fight against #bloodcancer! September is our #BloodCancerAwareness month. #BCAM #leukemia https://t.co/OlN1tqaQzG

@PVReporter Sep 16, 01:36

@andrewschorr @MPN_RF @MDAndersonNews @power4patients - First class experience, enjoyed working with everyone!

@PatientPower Sep 16, 01:32

Learn symptoms and complications of #MPNs through this infographic #MPNSM @power4patients @MPN_RF @PVReporter https://t.co/CQu9rYxiqs

@power4patients Sep 08, 00:03

Are you or a loved one struggling with #MPN diagnosis? Patient-run @PVreporter has tools to help you https://t.co/o2sgcgz45V

@PVReporter Sep 03, 14:43

Live your life to the fullest! #BloodCancerAwarenessMonth #bcam #mpnsm https://t.co/rXLiJi7UYv

@PVReporter Sep 02, 17:31

Join us in the fight against #bloodcancer! September is our #BloodCancerAwareness month. #BCAM #mpnsm https://t.co/SrCePY1vDx

@PVReporter Sep 01, 20:51

Today is the first day of #BloodCancerAwareness month! Join us in the fight against #bloodcancer and #MPN #BCAM https://t.co/hdqNNkCVTn

@power4patients Sep 01, 20:37

Sept is #BloodCancer Awareness Month & we’re highlighting 1 type: myeloproliferative neoplasms#MPN #MPNSM @PatientPower @PVReporter @MPN_RF

@PVReporter Aug 30, 15:06

Understanding the #JAK2 Mutation - https://t.co/d4sBgw8wws #blood cancer #mpnsm #gene

@PVReporter Aug 26, 13:31

@StraightANurse Thank you so much!...I try hard to help patients as much as I can.

@PVReporter Aug 26, 05:00

@StraightANurse - Oh my I really appreciate that!! PV Reporter has helped many patients the last 3 years, I'm very thankful for that.

@PVReporter Aug 25, 14:51

Honor someone who is improving the lives of #MPN patients, nominate them as an MPN Hero - https://t.co/c4dHhBnQ8n https://t.co/gJ5ALbyZLa

@PVReporter Aug 20, 20:57

"The minority of PV & ET patients progress, a relatively small %"....#mpnsm #enjoyinglife #CancerSurvivor https://t.co/IoAuSg5wyo

@PVReporter Aug 17, 15:19

Scientists are going to use #CRISPR on humans next month to try and cure #cancer - https://t.co/qeUSkuwxMC #mpnsm #research

@PVReporter Aug 17, 00:00

Check out this app built with @Appsmecom! https://t.co/5WkH0dD8xO

@PVReporter Aug 16, 15:25

Bone Marrow transplant without #chemo – Scientists create a safer way https://t.co/izidjJ0BLb #bloodcancer #research https://t.co/LE8r6FZKqZ

@PVReporter Aug 15, 17:52

#Exercise a Nonpharmacological Approach in #Symptom Mgmt in MPNs - https://t.co/7JEtPmKt9w #mpnsm #bloodcancer https://t.co/qkCAfKATun

@PVReporter Aug 13, 18:14

New Treatment for Cancer may provide Hope to Incurable Patients https://t.co/19ZByTagpp via @sharethis #mpnsm #bloodcancer #tcell

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