PV Reporter

PV Reporter provides “easy access” to pertinent information on Myeloproliferative Neoplasms (MPNs) for patients, caregivers, researchers and physicians.
Features include:
  • MPN Search is a “custom search engine” that indexes research data, reports, stories, and news items from top reference sources in the MPN World.
  • The latest MPN Video Library courtesy of Patient Power.
  • Automated News Feed with up to date articles from MPNforum, Patient Power, MPN Research Foundation and more.
  • MPN Resources

Cannot connect to download Twitter feed

@PVReporter Apr 24, 17:03

The Health Benefits of Therapeutic Oncology Massage for MPN #Cancer patients - https://t.co/NPUlwgDHSa #mpnsmhttps://t.co/lDis334we4

@PVReporter Apr 17, 18:56

Heidi's MPN story - An increasing trend in #patientadvocacy - https://t.co/Q0cTgy0eny #mpnsm #treatment

@jjkiladjian Apr 01, 15:45

Calr-mutant cells are attractive targets for new therapeutic strategies in #mpnsm by dr Araki @KomatsuNorioLabhttps://t.co/cdATjRZCr7

@PVReporter Mar 14, 16:44

Check out "revamped" PV Reporter RESOURCES pg, includes all 2017 Presentations fr Joyce Niblack MPN Patient Conf -… https://t.co/KSmwgiZva8

@abcDrBchat Mar 01, 01:25

Needs to improve! T3 MT @UDNconnect On average rare disease patients encounter >8 physicians on their journey to diagnosis #abcDrBchat

@PVReporter Feb 17, 17:18

OTC Combo of Zyrtec & Zantac helps PV patients get relief from itching - https://t.co/ZBLuLqsbck #BloodCancerhttps://t.co/39qIXHscl4

@jjkiladjian Feb 12, 23:37

underlining the results of 2 randomized trials comparing hydroxyurea to interferon alpha in PV & ET #mpnsm @APHPhttps://t.co/uEfyTypPEM

@oncologytube Jan 20, 00:21

Update on Long-acting Interferons for MPN https://t.co/aIJPUPKzKw https://t.co/eqb0ywm9f5

@PVReporter Jan 19, 20:32

PV Reporter ASH 2016 summary - https://t.co/FVd4YHgbI1 #mpnsm #ASH2016 https://t.co/WcI0JOOjA2

@PVReporter Jan 09, 18:20

Kickboxing my way to Sunshine! #Exercise Beats Exhaustion in MPNs. https://t.co/CfP66U1hro - #mpnsm, #depressionhttps://t.co/cuNrFlseQx

@PVReporter Jan 04, 21:43

You think there is an Environmental link to #MPN?, I am sure there is - https://t.co/fG06f5521a #mpnsm, #radiationhttps://t.co/qYN7PoB8D3

@PVReporter Jan 02, 15:17

David Wallace on Being Your Own Cancer Advocate - https://t.co/VuXg4QduVK #mpnsm #bloodcancer #advocate

@PVReporter Dec 19, 15:51

Dr Kiladjian #ASH2016 Reviews Outcomes of MPN Patients aft Interferon therapy discontinuation -… https://t.co/gpBiazKTAe

@PVReporter Dec 16, 22:32

Dr Rampal shares MPN updates on Clinical Research with PV Reporter - #ash2016 #mpnsm - https://t.co/vftCxZkag7 for… https://t.co/SGkmnOrbb4

@PVReporter Dec 08, 01:13

Ropeginterferon as Effective but Safer Than Hydroxyurea in Polycythemia Vera https://t.co/imHPCeMyDp #ASH16 #mpnsm

@PVReporter Dec 06, 20:00

https://t.co/nawFZtGAo9 PERSIST-2 Phase 3 Study Of Pacritinib vs BAT Shows encrgng Clinical Activity In High-Risk Patients w Adv MF #ASH16

@PVReporter Dec 03, 22:48

CURE® Magazine Hosts 4th Annual Gala Honoring MPN Heroes® https://t.co/DqfYWg8LF8 via @PRWeb #mpnsm #mpnheroes16

@PVReporter Dec 03, 22:45

Feeling honored for this award...All MPN patients are heroes fighting the battle! #mpnheroes16 #mpnsm #ASH16 https://t.co/TIjJq7AHP4

@PVReporter Nov 26, 21:13

Thank you @MPNAdvocate! Most of my "live reports" will be on #Facebook PV Reporter page. With more formal interviews posted upon return.

@PVReporter Nov 22, 00:03

I'm excited and looking forward to reporting from #ASH16! I have several areas of interest I will be studying & le… https://t.co/cf4SnGEmqJ

@PVReporter Nov 15, 21:37

@andrewschorr Appreciate that! Met #PatientAdvocate s fr around the world who are very engaged in supporting patients in their country.

@jjkiladjian Oct 25, 05:20

Exciting meeting in Vienna about the ropeginterferon studies. Results expected to be presented @ASH_hematology meet… https://t.co/2sIw1RfX33

@power4patients Oct 22, 23:35

Through his own research David Wallace found the right treatment for the control he wanted with his disease… https://t.co/JM3wJjhqBB

@JustinArnallUNC Oct 22, 23:34

Some MPN pts advocate & connect to help others, we have the founder of PV Reporter with us today!!! https://t.co/9hDNwx2H3O #MPNLCI16

@PVReporter Oct 18, 19:07

Is a cure for #bloodcancer around the corner? https://t.co/izvudT7csO #clinical trial #mpnsm, #cytarabine

@cure_magazine Oct 18, 04:02

The use of medical marijuana is surrounded by stigma, questions and misconceptions. https://t.co/rIs8xE7RHJ

@PVReporter Oct 07, 19:46

"Well you don't look sick." A phrase commonly heard by #MPN patients. #mpnsm #BloodCancer https://t.co/SK0BK83nQ9

@PVReporter Oct 04, 19:37

Repurposing Old #Drugs for New Indications https://t.co/YXYA5BQEAs via @rareDR, #raredisease

Cannot connect to download Facebook feed