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Jan 19, 18:02
PV Reporter Covers ASH 2016 - http://www.pvreporter.com/pv-reporter-covers-ash-2016/
Jan 13, 16:36
An excellent, informative video on managing MPN symptoms from our friends at Patient Power and MPN Voice - http://www.oncologytube.com/video/managing-mpn-symptoms-how-altering-my-lifestyle-helped-me/1037425
Jan 08, 00:20
A dose of inspiration for 2017, thanks for sharing Christine! http://www.pvreporter.com/kickboxing-my-way-to-sunshine/
Jan 05, 18:27
Finally... This is good news! SEATTLE, Jan. 5, 2017 /PRNewswire/ -- CTI BioPharma Corp. (CTI BioPharma) (NASDAQ and MTA: CTIC) today announced that...
Jan 02, 21:28
***A Significant Environmental Link*** - The Savannah River Site is on a list of qualified places for Special Exposure Cohort Employees (SEC) - https://mpncancerconnection.org/2017/01/dying-for-answers-radiation-link-to-myeloproliferative-neoplasms/
Dec 30, 00:34
I agree 100 percent! - http://www.curetoday.com/cure-tv/david-wallace-on-being-your-own-cancer-advocate
Dec 27, 00:28
I think it's time for a re-run of this early classic...don't over do it around the holidays, and for sure don't we all look mahvelous when it's family time 😎 ! Here is my new post about "Living with a Chronic Illness", be sure to check out Christine's post at the bottom called the "Spoon Theory" - http://www.pvreporter.com/well-you-dont-look-sick/
Dec 25, 00:55
Wishing everyone Happy Holidays and a New Year that rings in better health for us all!!
Dec 19, 00:53
Dr Kiladjian at ASH 2016 Reviews Outcomes of MPN Patients after Interferon therapy discontinuation - http://www.pvreporter.com/dr-kiladjian-ash-2016-reviews-outcomes-of-mpn-patients-after-interferon-therapy-discontinuation/
Dec 16, 20:25
**ASH 2016 Dr Rampal shares MPN updates on Clinical Research with PV Reporter** Ruxolitinib plus PIM and CDK4/6 inhibitors . I'm a little rusty (call it PV/travel fatigue), but still managed to put together this web page, video :) http://www.pvreporter.com/ash-2016-dr-rampal-shares-mpn-updates-clinical-research-pv-reporter/
Dec 16, 07:49
Dr Mesa delivers a clear, concise summary of noteworthy events at ASH 2016. Dr. Ruben Mesa (@mpdrc) gives updates from the 2016 American Society of Hematology relevant to the treatment of essential thrombocythemia, polycythemia vera,...
Dec 06, 23:47
Just a few final shots... ASH 2016 is a wrap!
Dec 05, 06:14
Unbelievable!!, the "thick blood" video had over 30,000 views in 24 hours, including all FB groups (thank you). That was essentially the same one used for my appearance on the Doctor's TV show last year. So who wants to help bring MPN awareness into the national spotlight? I have ideas, but need assistance ....I'm already deep into overtime, ha!
Dec 05, 01:08
Dec 05, 00:59
Taking in some MPN posters before the mob arrives :)
Dec 04, 18:43
First interview is around the corner! My "ultra basic" equipment and of course a tripod. Interesting, this is the first year ASH has required "tagging" your camera as camera crew/press pass. Now where is the rest of my crew? :)
Dec 04, 16:34
Progression from PV to MF (20 percent) or AML (5 percent) takes place in 25 percent of patients.
Dec 04, 00:52
The "thick PV blood" demo.... Incyte booth at ASH 2016.
Nov 24, 03:27
International MPN Organizations Page - just added to PV Reporter. If your country is not represented, please list it below. I'm sure to have missed a few :) - http://www.pvreporter.com/international-mpn-organizations/
Nov 21, 23:21
This is not MPN related, but someone may find it helpful. With all of our comorbidities, you just never know. I truly hope we can collectively help MPN patients one day, to the level of service that Virgil received. He wanted to share a sliver of his story, so here it is (thanks for sharing Virgil!) Virgil Anderson was recently diagnosed with mesothelioma cancer, which is a cancer caused by exposure to asbestos. He came in contact with asbestos while working on his family’s farm, but he was mainly exposed during his job as a press operator in the manufacturing of stovetops. Many other groups of people come in contact with a lot of asbestos and are also at risk. When he was diagnosed with mesothelioma he needed immediate medical attention. He found a few websites on the internet that are supposed to help people with mesothelioma cancer but nobody got back to him. Then he found Mesothelioma.net. Even though he contacted them on a Sunday one of their patient advocates gave him a call back within minutes. They gave him a great deal of helpful information on doctors and resources available to him. As a result of their website, he is now being treated at the national cancer institute and the patient advocates have even provided him with financial assistance so he could afford a place to live during his chemotherapy. If he had not reached out to this website he would likely be homeless and more importantly in Hospice waiting to die. These people gave him his only chance at survival.
Nov 12, 11:18
The first annual international MPN Horizons event has been a huge success in my eyes, yes even after one day!! I made friends from across the world... Some who had never heard of PV Reporter or my mission (through MPN Cancer Connection). After hearing their amazing stories of success and sharing a few of my own, I will be creating an "International Partners" page, to bring unity to the international community, while recognizing the work of fellow patient organizations who are equally passionate about their mission .... I heard some awesome stories last night.... With the realization our collective voices will be heard louder if we stand together in unity. Welcome my new brothers, I'm honored to have met you....face to face!