PV Reporter

PV Reporter provides “easy access” to pertinent information on Myeloproliferative Neoplasms (MPNs) for patients, caregivers, researchers and physicians.
Features include:
  • MPN Search is a “custom search engine” that indexes research data, reports, stories, and news items from top reference sources in the MPN World.
  • The latest MPN Video Library courtesy of Patient Power.
  • Automated News Feed with up to date articles from MPNforum, Patient Power, MPN Research Foundation and more.
  • MPN Resources

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@MedMarijuanaA May 14, 06:56

Why You Should Consider #MedicalMarijuana For Fatigue and Depression https://t.co/c5snp18F9k https://t.co/xyIdqVcfkL

@MPNConnect May 14, 06:50

What goals drive clinical decisions in P vera? Hear from Raajit K. Rampal, MD, PhD: https://t.co/ZmHJ5zob8Q #mpnsm https://t.co/GcHv0VlKtf

@VJHemOnc May 14, 06:43

VIDEO: @szusmani of @Carolinas on why he uses #socialmedia to engage with patients & healthcare professionals https://t.co/mzKUeTzqBq

@PVReporter May 06, 20:29

Bone and Joint Pain in MPN Patients Explained - https://t.co/hmgpo432nJ … - #inflammation #arthritis #cancer https://t.co/YYnkLCLCBn

@PVReporter May 04, 19:50

PV for Newbies - A Patient's Perspective, practical tips for the newly diagnosed - https://t.co/hzZoESg266 #mpnsmhttps://t.co/TPfaf5WQFU

@PVReporter May 01, 22:03

@dsproducer @AccessHealthTV @dsproducer I look forward to the half hour special. This video was very well received!

@PVReporter Apr 28, 20:06

Understanding PV, A Rare Blood #cancer Behind the Mystery, #Polycythemia Vera - https://t.co/Sdmv6sAgcX #mpnsmhttps://t.co/JGF0Dm0kqo

@MedscapeOnc Apr 27, 22:52

FDA takes decisive action against bogus #cancer cures. https://t.co/tRKchka1WM

@PVReporter Apr 24, 17:03

The Health Benefits of Therapeutic Oncology Massage for MPN #Cancer patients - https://t.co/NPUlwgDHSa #mpnsmhttps://t.co/lDis334we4

@PVReporter Apr 17, 18:56

Heidi's MPN story - An increasing trend in #patientadvocacy - https://t.co/Q0cTgy0eny #mpnsm #treatment

@jjkiladjian Apr 01, 15:45

Calr-mutant cells are attractive targets for new therapeutic strategies in #mpnsm by dr Araki @KomatsuNorioLabhttps://t.co/cdATjRZCr7

@PVReporter Mar 14, 16:44

Check out "revamped" PV Reporter RESOURCES pg, includes all 2017 Presentations fr Joyce Niblack MPN Patient Conf -… https://t.co/KSmwgiZva8

@abcDrBchat Mar 01, 01:25

Needs to improve! T3 MT @UDNconnect On average rare disease patients encounter >8 physicians on their journey to diagnosis #abcDrBchat

@PVReporter Feb 17, 17:18

OTC Combo of Zyrtec & Zantac helps PV patients get relief from itching - https://t.co/ZBLuLqsbck #BloodCancerhttps://t.co/39qIXHscl4

@jjkiladjian Feb 12, 23:37

underlining the results of 2 randomized trials comparing hydroxyurea to interferon alpha in PV & ET #mpnsm @APHPhttps://t.co/uEfyTypPEM

@oncologytube Jan 20, 00:21

Update on Long-acting Interferons for MPN https://t.co/aIJPUPKzKw https://t.co/eqb0ywm9f5

@PVReporter Jan 19, 20:32

PV Reporter ASH 2016 summary - https://t.co/FVd4YHgbI1 #mpnsm #ASH2016 https://t.co/WcI0JOOjA2

@PVReporter Jan 09, 18:20

Kickboxing my way to Sunshine! #Exercise Beats Exhaustion in MPNs. https://t.co/CfP66U1hro - #mpnsm, #depressionhttps://t.co/cuNrFlseQx

@PVReporter Jan 04, 21:43

You think there is an Environmental link to #MPN?, I am sure there is - https://t.co/fG06f5521a #mpnsm, #radiationhttps://t.co/qYN7PoB8D3

@PVReporter Jan 02, 15:17

David Wallace on Being Your Own Cancer Advocate - https://t.co/VuXg4QduVK #mpnsm #bloodcancer #advocate

@PVReporter Dec 19, 15:51

Dr Kiladjian #ASH2016 Reviews Outcomes of MPN Patients aft Interferon therapy discontinuation -… https://t.co/gpBiazKTAe

@PVReporter Dec 16, 22:32

Dr Rampal shares MPN updates on Clinical Research with PV Reporter - #ash2016 #mpnsm - https://t.co/vftCxZkag7 for… https://t.co/SGkmnOrbb4

@PVReporter Dec 08, 01:13

Ropeginterferon as Effective but Safer Than Hydroxyurea in Polycythemia Vera https://t.co/imHPCeMyDp #ASH16 #mpnsm

@PVReporter Dec 06, 20:00

https://t.co/nawFZtGAo9 PERSIST-2 Phase 3 Study Of Pacritinib vs BAT Shows encrgng Clinical Activity In High-Risk Patients w Adv MF #ASH16

@PVReporter Dec 03, 22:48

CURE® Magazine Hosts 4th Annual Gala Honoring MPN Heroes® https://t.co/DqfYWg8LF8 via @PRWeb #mpnsm #mpnheroes16

@PVReporter Dec 03, 22:45

Feeling honored for this award...All MPN patients are heroes fighting the battle! #mpnheroes16 #mpnsm #ASH16 https://t.co/TIjJq7AHP4

@PVReporter Nov 26, 21:13

Thank you @MPNAdvocate! Most of my "live reports" will be on #Facebook PV Reporter page. With more formal interviews posted upon return.

@PVReporter Nov 22, 00:03

I'm excited and looking forward to reporting from #ASH16! I have several areas of interest I will be studying & le… https://t.co/cf4SnGEmqJ

@PVReporter Nov 15, 21:37

@andrewschorr Appreciate that! Met #PatientAdvocate s fr around the world who are very engaged in supporting patients in their country.

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