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Mar 24, 03:32
Shared stories and "words of wisdom" from patient advocates around the country. Be Your Own Advocate is of the utmost importance! Produced by our friends at Patient Empowerment Network. . The panel of patient advocates includes David Denny a Myelofibrosis (MF) patient, Andi Malitz an Essential Thrombocythemia (ET) patient, and Alisa Rouse a Polycythemia Vera (PV) patient. The panel shares their inspiring stories, how MPN has effected their life, and what they do to live well with t...
Mar 12, 20:53
**The PV Reporter Resources Page - has been updated to include All of the Highly Informative presentations from the 2017 Joyce Niblack MPN Patient Conference**, scroll down to the middle of the page - http://www.pvreporter.com/resources/
Mar 10, 22:30
An interesting commentary, Incyte has been speculated as an acquisition candidate for the last year or so- https://www.streetinsider.com/dr/news.php?id=12656726&gfv=1
Feb 17, 02:01
We Are MPN: Education Symposium for Patients (Irvine, CA). This is at Dr Angela Fleischman's UC Irvine campus, April 22, more details forthcoming - http://www.wearempn.org/we-are-mpn-patient-education-program
Feb 13, 22:02
Many researchers have expressed an interest in exploring P1101’s potential as an alternative interferon that can cause less severe side effects compared with other medications, such as Roche Holding AG’s peginterferon alfa-2a (Pegasys), the company said. PharmaEssentia backs new study on PV drug - PharmaEssentia Corp yesterday announced that it is backing a physician-led clinical study in Europe testing its drug to treat polycythemia vera (PV) as a preventative measure for a wider age range of patients. - http://www.taipeitimes.com/News/biz/archives/2017/02/14/2003664919
Feb 11, 16:53
Anxiety, Distress Common Among Patients With BCR-ABL-negative MPNs (this is not surprising) - http://www.oncologynurseadvisor.com/myeloproliferative-neoplasms/psychological-symptom-burden-for-patients-with-myeloproliferative-neoplasms-examined/article/636872/
Feb 04, 22:49
by Alisa Rouse - With sadness I'm sorry to share with you that the MPN community has lost one of the pioneers. Robert Tollen passed away in his sleep on February first. He was one of the first to bring awareness to the diseases with an email list and advocated in the early days of the internet. He was one of the first to advocate the use of interferon in MPNs and has continued to advocate through social media and Facebook. I'm sure most of us have had a conversation with him at some point. If you have, you know that he could be a little abrasive at times or possibly extremely abrasive at others, but in the end he was intelligent and educated on our diseases. Love him or hate him he meant well and really did make a difference. So with that in mind, please no negative comments and let's please keep his family and our community in our prayers during this time of loss. http://www.legacy.com/obituaries/herald/obituary.aspx?n=robert-richard-tollen&pid=183928845
Jan 29, 21:26
A Gaping Hole in U.S. Research on MPN Combo Therapies (RUXOPeg) - See more at: https://mpncancerconnection.org/2017/01/dr-mesa-and-dr-mikhael-discuss-latest-mpn-research-2017/#sthash.rG7GXvTd.dpuf
Jan 20, 20:01
The latest on long-acting Interferons - http://www.oncologytube.com/video/update-on-long-acting-interferons-for-mpn/1038272
Jan 19, 18:02
PV Reporter Covers ASH 2016 - http://www.pvreporter.com/pv-reporter-covers-ash-2016/
Jan 13, 16:36
An excellent, informative video on managing MPN symptoms from our friends at Patient Power and MPN Voice - http://www.oncologytube.com/video/managing-mpn-symptoms-how-altering-my-lifestyle-helped-me/1037425
Jan 08, 00:20
A dose of inspiration for 2017, thanks for sharing Christine! http://www.pvreporter.com/kickboxing-my-way-to-sunshine/
Jan 05, 18:27
Finally... This is good news! SEATTLE, Jan. 5, 2017 /PRNewswire/ -- CTI BioPharma Corp. (CTI BioPharma) (NASDAQ and MTA: CTIC) today announced that...
Jan 02, 21:28
***A Significant Environmental Link*** - The Savannah River Site is on a list of qualified places for Special Exposure Cohort Employees (SEC) - https://mpncancerconnection.org/2017/01/dying-for-answers-radiation-link-to-myeloproliferative-neoplasms/
Dec 30, 00:34
I agree 100 percent! - http://www.curetoday.com/cure-tv/david-wallace-on-being-your-own-cancer-advocate
Dec 27, 00:28
I think it's time for a re-run of this early classic...don't over do it around the holidays, and for sure don't we all look mahvelous when it's family time 😎 ! Here is my new post about "Living with a Chronic Illness", be sure to check out Christine's post at the bottom called the "Spoon Theory" - http://www.pvreporter.com/well-you-dont-look-sick/
Dec 25, 00:55
Wishing everyone Happy Holidays and a New Year that rings in better health for us all!!
Dec 19, 00:53
Dr Kiladjian at ASH 2016 Reviews Outcomes of MPN Patients after Interferon therapy discontinuation - http://www.pvreporter.com/dr-kiladjian-ash-2016-reviews-outcomes-of-mpn-patients-after-interferon-therapy-discontinuation/
Dec 16, 20:25
**ASH 2016 Dr Rampal shares MPN updates on Clinical Research with PV Reporter** Ruxolitinib plus PIM and CDK4/6 inhibitors . I'm a little rusty (call it PV/travel fatigue), but still managed to put together this web page, video :) http://www.pvreporter.com/ash-2016-dr-rampal-shares-mpn-updates-clinical-research-pv-reporter/
Dec 16, 07:49
Dr Mesa delivers a clear, concise summary of noteworthy events at ASH 2016. Dr. Ruben Mesa (@mpdrc) gives updates from the 2016 American Society of Hematology relevant to the treatment of essential thrombocythemia, polycythemia vera,...